Phil Joddrell is a Research Fellow in the Research and Publications team at the national charity Dementia UK.
His team works with people living with dementia, health and social care professionals, and academics to carry out research on the best ways to support people affected by dementia.
Your Project
Dementia UK are currently developing a ‘core outcomes set’ for Admiral Nurses. A core outcomes set is an agreed set of tools used to measure the impact of a service or intervention. In this case, the core outcomes set will be used to measure the impact of Admiral Nurses in all services across the UK. At the moment, different tools are used depending on the Admiral Nurses and the service they provide. The advantage of everyone using the same tools is that Dementia UK as a charity can demonstrate the value of Admiral Nurses much more easily and effectively.
This is a very important project for Dementia UK and will shape the work of Admiral Nurses in the future, so your contributions to the project would be extremely valuable and highly appreciated.
Who specifically do you want to be involved?
We are looking for a person living with dementia who has experience or knowledge of Admiral Nursing who would be willing to join our advisory group for this project.
When will the project take place?
The project is ongoing and will take place until December 2027
Where will the project take place?
Advisory group meetings will take place online and there will be some email contact (or telephone if preferred) in between meetings.
How long will people be involved for?
We will have two online meetings each year (90mins max) and then there will be occasional requests for support with developing study documents.
How many people with dementia do you want to involve?
We would like to invite one or two people to join this advisory group.
What kind of support is available?
We will do our best to accommodate any requirements to ensure that volunteers are able to contribute meaningfully to the advisory group.
Who will be doing the administration?
Our research team will take care of all the administrative tasks.
What kind of expenses are available?
Whilst all planned activities will be online in a voluntary capacity, any additional unanticipated expenses would be covered.
Have you got a budget to pay for refreshments and venue hire as well as transport?
As above, none planned but if this were to change then we would cover these costs.
How will you make sure that people’s information is kept safe or anonymous?
Dementia UK will ensure your personal information is looked after securely, and we only process data in the ways that we say we do in our privacy notice.
Have you got relevant ethical approval for research projects?
Volunteering as an advisory group member does not require ethical approval, but the project activities will seek ethical approval.
Are you or your organisation going to profit financially or otherwise?
Dementia UK is a not-for-profit charity organisation.
How will you let people know what has happened because of their involvement?
For the duration of the project, all advisory group members will receive regular updates and be invited to contribute to any reporting.
When will you be able to report back about progress on the project?
Updates will be shared throughout the project, with final results expected in early 2028.
For more information contact
