DEEP Groups - UK Network of Dementia Voices

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Dementia Voices Brent


Dwyfor & Meirioydd DEEP United

6th Nov 2018

The Dwyfor & Meirionydd DEEP United group is newly founded and will have it’s first official meeting on the 3rd December. It was decided by the group to hold the meetings in Barmouth as this is a central location between the two areas and has good train links. The group brings together participants of the […]

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Ashford Phoenix – Rising Above Dementia

The Ashford Phoenix – Rising above Dementia group is for people who have a diagnosis of dementia and who are living in the Ashford area, and who have been service-users of the local Dementia Assessment, Diagnosis, and Treatment Service. The group meets once a month to discuss topical issues surrounding dementia and also to express […]

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Leeds Involving People


Dementia Voices, East Dunbartonshire

8th Oct 2018

Dementia Voices is a group where people living with dementia can have the opportunity to discuss specific issues or concerns they may face and where their views and opinions on local issues and services can be voiced. Our group is aimed at people living with dementia but we recognise the vital role family, friends and […]

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Dementia Havens


D-Mob

D-Mob is part of the DEEP network. We formed in early 2018 with the partnership of Brighton and Hove DAA’s Matthew Moors and the support of local OTs Fran Hamilton and Louisa Marchant. We are a young group (in how long we have been together, but very young in our spirit too!) finding our feet […]

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Kindred Spirits


Singing for Fun, Chepstow


Impact Arts


Inspire


Grampian NHS Arts Trust


North Berwick DEEP Group


Cockenzie DEEP Group


Musselburgh DEEP Group


Dunbar DEEP Group


Haddington DEEP Group


Eric Liddel Centre


Movie Memories


Musical Memories


DEEP Bury


DEEP Wirral


DEEP Cheshire West


Up and Go (Leeds)


National Museum for Wales


Going Forward, Cwmbran


Craven DEEP Group


Wigan DEEP Group


Dementia Matters in Powys – South Wales


Dementia Matters in Powys – Mid Wales


Dementia Matters in Powys – North Wales


Lingo Flamingo


Vintage Vibes


Go Outdoors @ Evanton Community Wood

We are a social group that meets in Evanton Community Wood to undertake a wide range of creative and other activities, often ending in a cooked lunch. We meet weekly at the Log Cabin and welcome people with dementia and their carers.  Suitable volunteers are also welcome.  

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Cheshire West Partnership DEEP


North Wales Dementia Network


DEEP in Deeside


Mary Seacole House


Irish Community Care Merseyside


Market Drayton DEEP


Whitchurch DEEP Group


Buddy Group


Lifting the Cloud


PCA Support Group, Berkshire


Lancashire Dementia Community


Plymouth Alzheimer’s Society Leadership Group


PACE


Clear Voices 2, Bedford

“This is the group where people listen to me.” (Member of Clear Voices)

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Arora Dementia Friendly Community An Lanntair

13th May 2018

The Arora team are delighted to have won the ‘best dementia friendly community initiative’ at this year’s Scottish Dementia Awards in Glasgow on 22nd September 2016. – http://www.alzscot.org/news_and_community/news/3702_scotland_s_leading_dementia_projects_celebrated

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Salford Dementia Champions Group

24th Jul 2017

The Salford Dementia Champions Group formed in January 2013 to help Salford City Council and the Clinical Commissioning Group improve the delivery of dementia services and support in Salford for those with dementia and their carers. They meet every second Tuesday 10 – 12.30 at Humphrey Booth Resource Centre, Swinton.

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Trailblazers, Oswestry

13th Jul 2017

We meet once a week on Fridays (10 – 11.30 Cabin Lane Community Church).  We chat, do quizzes, crafts and painting, drink tea and coffee, play games.  We never do child activities…our members are treated as adults.

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The Memory Jar, Cowbridge

The Memory Jar meets on a monthly basis for people living with dementia.  We provide opportunities to talk together, make new friends and engage in a range of activities in a secure and pleasant environment with people who understand.

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Shrewsbury DEEP Group


DEEP Vibes, Scarborough


Memoria, Cardiff

7th Jun 2017

Memoria is a creative and supportive group for people living with dementia, family members and professional carers. The group share their experience of living with dementia for audiences, theatres, conferences and community sharings.

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Borders Dementia Working Group, Scottish Borders

8th May 2017

The BDWG meets monthly to offer a voice for people with dementia on the issues and services that affect them in the Scottish Borders.    

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Fuse & Muse, Swansea


Ty Golau, Kidwelly and Llanelli

17th Nov 2016

Ty Golau (House of Light) is a health and wellbeing group for people with memory problems, Alzheimer’s/dementia type illnesses, their carers and professionals. Ty Golau is not just a social group! A group with activities which are specifically aimed at stimulating the brain in an appropriate, non-threatening, fun way.  Reminiscence therapy is a large part […]

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Feelgood Friday, Llandysul


Me, Myself & I, Briton Ferry


Dementia Alumni, Glasgow


Abbeyfield, Winnersh

12th Sep 2016

Abbeyfield is a care home group of people with dementia. The group meet weekly and are looking to give a voice to people with dementia.  

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SUNShiners, Kent

5th Sep 2016

The SUNshiners group is a service user network group for people living with dementia from Dover, Deal and Shepway. They come together once a month to discuss local and national issues about dementia. The meeting follows a business style with an agenda and a tea break in the middle allowing members to socialise. The group […]

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Halcyon Quest, Rhuddlan

Halcyon Quest is a social group for people with memory problems or dementia diagnosis (and their families), that meets on the last Tuesday of every month.

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Fabulous Forgetful Friends, Manchester

18th May 2016

Fabulous Forgetful Friends is a Manchester based group for people with dementia and their carers.

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The Liverpool Service User Reference Forum (SURF)

23rd Mar 2016

SURF is a group of people who represent the views of people living with dementia, their carers & families across the City of Liverpool. Our vision is to improve the quality of life for people living with dementia, their carers and families and also to make Liverpool a dementia friendly city.

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User and Carer Involvement (UCI), Dumfries

10th Mar 2016

UCI is an independent charity.  Our DEEP work is intended to facilitate the involvement of people living with dementia in care and clinical settings in influencing service delivery and policy. We also work with Creating Dementia Friendly Communities.    

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Our Voice Matters, Hartlepool

27th Jan 2016

Our Voice Matters currently has 6 members, all of whom are living with dementia, and meets the second Monday of the month 2-3.30 at The Bridge, Gemini Centre, Villiers Street, Hartlepool  TS24 7SA (The Bridge 01429 868587). The group has been involved in initiatives such as: Planning dementia awareness week 2016 Memory Walk 2015 Working […]

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Chinese Wellbeing on behalf of Liverpool DAA Diversity Sub Group

19th Jan 2016

Chinese Wellbeing are a small charity working mainly with the Chinese community in Liverpool.

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Dementia Voice, Worcestershire

Dementia Voice is a monthly group for younger people living with dementia (those diagnosed before the age of 65). There is an opportunity to meet others, to share ideas on coping and to work together to consider small changes which may help others living with dementia at a younger age. We also have lots of […]

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Dementia Voices Stockton

9th Dec 2015

Dementia Voices Stockton is an advocacy project for people with dementia and their carers. We have an advisory group, coffee mornings, advocacy drop ins, volunteer groups and many other exciting opportunities. The main aim is to support those with dementia and their carers by listening and hearing them and in turn influencing service provision and initiating […]

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The Kymin Group, Cardiff (formerly NEXUS)

10th Sep 2015

The Kymin Group involves those who use older people’s mental health services and their carers to have say in the way that those services are planned, run and developed. Involvement by service users and carers means services become more suited to the needs of those who use them and, by implication, make them more successful. […]

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York Minds and Voices

24th Apr 2015

Opening minds and moving forward Minds and Voices began in September 2014 and membership has steadily increased month by month as we become more established and recognised by local services. Our name was agreed after several months meeting and discovering what the group is all about. ‘Minds and Voices, opening minds and moving forward’ is […]

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Redditch and Bromsgrove ‘Friends Together’

2nd Feb 2015

Redditch and Bromsgrove ‘Friends Together’ are a proactive group of individuals who have a diagnosis of dementia who meet to support each other and find ways to improve their communities. The ‘Friends Together’ group are interested in finding ways to improve services and attitudes, to make a better, fairer community for everyone living with a […]

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Weekend Day Centre for Dementia Care (Stockport)

The Weekend Day Centre for Dementia Care is open every weekend and bank holiday throughout the year (except Christmas Day). The Centre provides day care for up to 40 clients each day; carers are welcome to attend, or to have a break at home for the day. The Weekend Day Centre offers a wide range […]

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The Laverstock Memory Support Group, Salisbury

18th Aug 2014

“This meeting up really helps my memory. It’s surprising what we remember and how we help and learn from each other.”

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Face it Together (FIT), Bradford

30th Jul 2014

The Face it Together (Alzheimer’s Society) group, based in Bradford, are actively involved in informing the Dementia Friendly Community work in the Bradford area. The group meet every month to: Discuss the impact of dementia on their lives and support each other. Take part in awareness-raising campaigns. Think about campaigns that the group want to […]

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Dementia Action Forum

17th Jul 2014

The Dementia Action Forum is a community voluntary group made up of people in Derby and South Derbyshire who are living with dementia (including family carers). The group believes that the person with dementia and their carer are a team and should be considered together. What affects one directly affects the well-being of the other. […]

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Sheffield Dementia Involvement Group (SHINDIG)

SHINDIG is a city-wide forum that meets 4 times a year and aims to provide opportunities for people living with dementia in Sheffield (and their family carers) to share ideas, views and opinions on local services and developments. The group name emerged because of the lively, sociable and fun atmosphere that is created and the […]

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Highland Dementia Working Group

17th Jun 2014

Ensure your voice is heard directly – it is the voice of experience.

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Memorybilia, West Kent

11th Jun 2014

Many organisations, including the Kent and Medway NHS and Social Care Partnership Trust and Alzheimer’s Society, are trying to improve the quality of service they offer to people with dementia. It’s vital that the opinions of people living with a diagnosis are heard by those who make decisions. This group aims to help raise the […]

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South Yorkshire Dementia Disorders Research Advisory Group (SYDEM RAG)

The ‘South Yorkshire Dementia Disorders Research Advisory Group’ (SYDEM RAG) is a committee created to bring together people with dementia, carers and members of the public from the local area of Yorkshire. The Advisory Group meets face-to-face on a quarterly basis and also has monthly contact via email and post to review projects and documents. […]

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Oldham Dementia Carers Group: Springboard

19th May 2014

Springboard’s group objectives are to provide a safe, welcoming peer group to support people and their families, friends and carers who are suffering from all types of dementia and its effects within the Metropolitan Borough of Oldham and it’s surrounding areas (the area of benefit). Springboard provide emotional and practical support, advice, education and try […]

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Camden Minds

12th May 2014

The Camden Minds are a dementia Involvement Group based in the London Borough of Camden. Camden Minds members describe themselves as a “friendly bunch”. The group meet on a monthly basis in the Belsize Park area. The aims of the Camden Minds are to: Reduce the stigma of dementia Have a say in services and […]

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The Beth Johnson Foundation Group, Stoke-on-Trent

8th May 2014

The Beth Johnson Foundation Group ensures that the voices of people who have a diagnosis of dementia are actively heard in order to influence all aspects of dementia-related work. The group, based in Stoke-on-Trent, aims to influence professionals from a grassroots perspective by raising further awareness about living positively with a dementia. Beth Johnson Foundation Group members support each […]

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The LINK Group, Worcester

6th May 2014

The LINK Group–people with lived experience of dementia supporting students, professionals and researchers to understand dementia.

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The Advocacy Group, Lewisham

1st May 2014

The Advocacy Group, supported by Lewisham MindCare, is part of Bromley and Lewisham Mind. The group meets on a monthly basis in Ladywell and is open to anyone known to the Lewisham MindCare service. The group has a core membership of 15 people, all in the early stages of a dementia diagnosis. Monthly meetings enable […]

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Healthy Living Club, Stockwell

29th Apr 2014

The Healthy Living Club “produced a successful (simple!) model of self-care that could be used as a model by others —the beauty is that it’s nothing more than a system of mutual exchange, within which everybody’s input is valued equally.” (Simona Florio)

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Young Dementia UK — Like Minds, Oxfordshire

28th Apr 2014

Like Minds provides a space for younger people with dementia who are interested in coming together, to meet each other and to share time and ideas.

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Clear Voices, Bedford

16th Apr 2014

“This is the group where people listen to me.” (Member of Clear Voices)

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Cornwall and Isles of Scilly Leadership group

8th Aug 2013

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The Forget Me Nots, Kent

2nd Jul 2013

We are a group that has been running for 6 years in Canterbury. Our aims are to raise the standards of dementia services nationally, whilst acting as a network to combat the stigma of dementia together. Achievements of the group include organising a Kent wide dementia day, raising awareness about living with dementia in schools […]

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West of Berkshire Empowerment Group

Our empowerment group encourages people with dementia to speak out about issues that affect their lives.  The group contribute to local consultations and invite speakers from local health and social care, local businesses and other groups with an interest in dementia. The group meets once a month.

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Dementia NI

26th Mar 2013

Dementia NI is an organisation set up by people with dementia in Northern Ireland

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Torbay Dementia Leadership Group

10th Mar 2013

This is an Empowerment Group of people with an early diagnosis of dementia which provides some peer support, discusses matters and services concerning people with dementia, and is active in influencing local services and organisations.

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Scottish Dementia Working Group (SDWG)

The Scottish Dementia Working Group (SDWG) is a national campaigning group, run by people with dementia. We are the independent voice of people with dementia within Alzheimer Scotland. The Working Group campaigns to improve services for people with dementia and to improve attitudes towards people with dementia. Membership is open to people with dementia. Meetings […]

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Positive Dementia Group, Aberdeen

The Positive Dementia Group, based in Aberdeen, is involved in awareness raising through giving talks to students, chaplains, social workers etc. They are also involved in media work (e.g. radio interviews, TV, newspaper articles & ‘Through Our Eyes’ DVD). Some members have spoken at conferences about their experience. They have also been involved in consultation by the […]

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Open Doors Project, Salford

The Open Doors Project employs a person with dementia and leads on the development of a range of initiatives across Salford, including a dementia cafe providing post-diagnostic education and support (in conjunction with memory services), a friendship and support network for individuals newly diagnosed, participates in steering groups in relation to key service redesign, provides […]

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Forget Me Not, Swindon

Forget Me Not is a group in Swindon, made up of people with dementia under the age of 65 who come together for peer support and social activities as well as raising awareness about dementia with professionals and in their communities.

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EDUCATE (Early Dementia Users Co-operative Aiming To Educate), Stockport

EDUCATE looks to give people living in the Stockport area with dementia a voice through involvement in training, or speaking to others about their experiences of having dementia. They have a website at:   www.educatestockport.org.uk    

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