Dementia rights
Government invites views on tackling major conditions in England – GOV.UK (www.gov.uk) A call for evidence has been launched to inform strategy on how best to prevent, diagnose, and manage six major groups of conditions. The Major Conditions Strategy will cover cancer, mental health and dementia. The strategy will take a long-term view of how […]
The Scottish Government writes: We are grateful to everyone who contributed to our National Conversation. The range of voices we heard, whether it be in writing, online or in-person, provided an incredibly strong basis on which to consider what a new Dementia Strategy for Scotland can and needs to achieve. The engagement work was led […]
The Scottish Dementia Alumni have made a film about the making of their “Dementia and GP Services” booklet. And you can download the booklet here – GP Project Digital Final
Scottish Government consulted with people living with dementia and those involved in their care and support. They aimed to develop a transitional document for dementia during these extraordinary times of COVID-19. There is an intent to write a new strategy for dementia in and over the next 18 months. The transitional action plan was published […]
The ‘Dementia and GP services’ booklet was researched and written by the Scottish Dementia Alumni, a group of people who have lived with diagnoses of different dementias for several years. We are experienced campaigners who actively fight for the rights of people living with dementia. Over the past decade, between us we have gained a […]
Damian Murphy is one of the facilitators for York Minds and Voices Minds and Voices have produced their own Dementia Strategy for York. Damian writes to the group, but it is a loud and clear message to everybody out there! You can read the strategy here: THE YORK Minds And Voices DEMENTIA Strategy Great work […]
Here are some documents from the Dementia Oversight Implementation and Impact Group in Wales. Chris Roberts, Jayne Goodrick and Nigel Hullah represent the voices of people living with dementia in this group. Nigel has been given permission to circulate these documents by Welsh Government . Nigel says: “Don’t worry you won’t have to read them […]
You may recall the fabulous work of the Scottish Dementia Alumni in producing a Dementia and Self-Management booklet Dementia and Self Management Peer to Peer Resource (WEB) They have also now produced a poster recently shown at the Hammond International Dementia Conference in Australia. the poster can be seen, with others, here: https://idc2020.paperlessevents.com.au/list and you […]
The Scottish Dementia Alumni have been awarded a grant of £5,000 to create a resource to help GPs better support those living with dementia in their community. The funding has been awarded by the Life Changes Trust. The Scottish Dementia Alumni are a group of individuals living with a diagnosis of dementia, and who are […]
Are you new to dementia activism – or an advocate or ally of people who are? These tips draw on twenty years of learning by activists in Scotland. We hope that they hep you to avoid ‘bear traps’ and ‘reinventing the wheel’ – and to become a successful and well-supported activist! Click on link below […]
A new resource has been co-produced by The Centre for Economic and Social Research on Dementia, The Irish Dementia Working Group and The Alzheimer Society of Ireland. Guidelines for involving people with dementia in policy, advisory, consultation and conference activities draws on the voices of people living with dementia in Ireland and also draws on […]
This booklet was written and researched by the Scottish Dementia Alumni, a group of people who have each been living with different diagnoses of dementia for over ten years. We are experienced campaigners who have actively fought for the rights of people living with dementia for over a decade. We are people who have had […]
Scotland is above England, not only geographically, but also in Dementia support. This is because health and social care have been devolved to the Scottish Parliament. Nationally, the government has made Personal Care free for all with an overriding condition, not only those over 65. This came about from Franks Law, named after Frank Koppel […]
Dory and I went to a conference at St David’s Hall, Cardiff. It was set up by Social Care Wales with the aim of sharing all that is being provided for people living with dementia in Wales in order to share thoughts on better ways of communicating and engaging with peeps like us. As per […]
A wonderful resource has been created in partnership with Pennine Care NHS Foundation Trust, Dementia United, Oldham Dementia Action Alliance, Oldham Cares and individual members of the DEEP Network and the groups Lets Be Heard, Springboard. Brilliantly and creatively captured by clinical psychologist Polly Kaiser and the cartoonist Tony Husband. Download the PDF version here: […]
The banners will be on display at The People’s History Museum in Manchester until January 19th 2020 Further information here:https://phm.org.uk/exhibitions/the-unfurlings-a-banner-display/
Is the Wales Dementia Plan working for you? There is an evaluation currently being done by Opinion Research Services. This is to provide the Welsh Government with evidence about the aims, implementation and contribution of the Dementia Action Plan (DAP). They are keen to hear from key stakeholders across dementia services, including in health and […]
Conference 19 November 2019 10am—3.30pm St George’s Centre, 60 Great George Street, Leeds, LS1 3DL A conference to identify and discuss commonly occurring problems in accessing key legal rights to health and social care— and how these can be addressed Session 1 Short updates / with discussion on current / completed research projects (including): • […]
Lydia Nicholas says: “I wanted to send a note to say thank you for your support in reaching fantastic self-advocates to be a part of our work on tech and social care. I’m pleased to share with you a copy of Doteveryone’s new report, Better Care in the Age of Automation with our recommendations for […]
Dory, Fran and Vesna took part in the National Dementia Action Alliance event Dory from DEEP in Deeside and Vesna from Lewisham Dementia Advocacy Group shared their experiences about the sort of care they would like to receive in the future. The session was chaired by D-Mob facilitator and Occupational Therapist Fran. People commented on […]
DEEP 10th anniversary films
