This book list about dementia has been shared by Ruth McCabe from STAND in Fife.
It is a long list and it would be great to capture as many books as possible that you have found useful, whether because you are living with dementia or a professional or a family member.
- What books would you particularly recommend and why
- Can you recommend a book not on the list
- If you had to narrow the book list down which would be your top six
- Is the book available in an audio format
- Is the book available for kindle
Book List
Slow Puncture – Living well with dementia – Peter Berry and Deb Bunt – ISBN 9781913208936 – Published 28 Sept 2020
50 Shades of Dementia – Norms McNamara – Dementia Poems written by someone living with dementia – ISBN 9781089449225 – Published by and available on Amazon
Talking Sense – Agnes Houston and Julie Christie – Living with Sensory Changes and Dementia – Hammond Care – ISBN – 9780648241560 – – 2018
Alzheimer Disease and Other Dementia’s – Dr Nori Graham and Dr James Warner – Family Doctor Books- general information about the disease and how to live well with it – very easy to understand – ISBN 1903474612, 2009 – Amazon
Losing Clive To Younger Onset Dementia– Helen Beaumont – personal story about her husband – Jessica Kingsley Publishers – ISBN – 978843104803 – 2009, available on Amazon
Keeping Busy – James R Dowling – A Handbook of Activities for Persons with Dementia – John Hopkins University Press, 1995 – ISBN – 0801850952 – available on Amazon – can be borrowed from Fife Carers Centre
Dementia – Frank and Linda’s Story – Louise Morse – All kinds of helpful information centred around the personal story – Monarch books – ISBN – 9781854249302 – available on Amazon
My Bonnie – John Suchet – Personal story of supporting his wife with younger onset dementia – Harper Collins, 2010, ISBN – 9780007328413 – available on Amazon
Developing Support Groups for Individuals with Early Stage Alzheimer’s Disease – Robyn Yale – Health Professions Press, 1995 – ISBN 1878812262 – available on Amazon
Dear Alzheimer’s – A Diary of Living with Dementia – Keith Oliver – Jessica Kingsley Publishers, 2019, ISBN 9781785925030 – available on Amazon
My Home My Life – Practical Ideas for People with Dementia and Cares – Colm Cunningham, Natalie Duggan and Agnes Houston – Hammond care, 2018, ISBN – 978099454617 – available from Hammond Care –
Contented Dementia – Oliver James – “A revolutionary way of treating dementia – brings amazing benefits for patients and carers alike – Vermillon, 2008, ISBN 9780091901813 – available on Amazon
What Dementia Teaches Us About Love – Nicci Gerrard, 2019 – gives information about dementia and recounts Nicci’s experience of supporting her dad who had dementia – 2019, Allen lane, 9780241347454 – available on Amazon
Someone I used to Know – Wendy Mitchell – a personal story of living with Younger Onset Dementia – 2018, Bloomsbury, 9781408893333 – available on Amazon
Alzheimer’s from the Inside Out – Richard Taylor – a personal story of living with dementia – 2007 Health Professionals Press – 139781932529234 – available from Amazon
Welcome to Our World – A Collection of life writing by people living with dementia – 2014 – 9780993074202 – available for the Alzheimer Society website shop
I Remain in Darkness – Annie Ernaux, Fitzcarraldo Editions, 1999 – 9781910695975 – available from Amazon
The Little Girl in the Radiator – Martin Slevin – Author House, 2010, 9781452047867 – available from Amazon
Love in the Shadows – Rhena Taylor – 1996 – Scripture Union – 1859990681 – available from Amazon
Walk The Walk Talk the Talk – Keith Oliver – 2016 – 9780993074219 – available from the Alzheimer Society Website
Learning To Speak Alzheimer’s, The New Approach to Living Positively with Alzheimer’s Disease – Joanna Koening Coste – 2003 – Vermillion – 978009188672 – available from Amazon
My Journey Into Alzheimer’s Disease – Robert Davies – 1989 – Tyndale – 139780842346450 – Available from Amazon – This text will be helpful to you if you are of a Christian faith.
Stop Alzheimer’s Now! – Bruce Fife, N.D. – 2011 – Piccadilly Books – 9780941599856 – Available from Amazon
The 36 Hour Day – Nancy L. Mace and Peter V. Rabins – 2017 – Johns Hopkins University Press – 139781421422237 – An exceptionally useful book for all the family – Available from Amazon
Living With Alzheimer’s – A Love Story – Robin Thomson – 2020 – 9781912726196 – Instant Apostle – available from Amazon
Singing Groups For People With Dementia – Diana Kerr – 2015 – 9781909300958 – The Choir Press – available from Amazon
The Grain Brain Cookbook – Dr David Perlmutter – 2014 – 9781473619173 – Yellow Kite – available from Amazon
Could It Be Dementia – Louise Morse and Roger Hitchings – 2009 – 9781854248251 – Monarch Books – available form Amazon – will be particularly useful if you have a Christian faith
Two Different Shoes – Poems and Reflections by people living with dementia – 2018 – Life Changes Trust – 9781999304805 – available from the Life Changes Trust
You Are Words – Dementia Poems – John Killick – 2011 – Journal of Dementia Care – 9781874790907 – available from Amazon
A Dignified Life – The Best Friends Approach to Alzheimer’s care – A Guide for Care Partners – Virginia Bell, David Troxel, 2012 – Health Communications Inc – 139780757316654 – available from Amazon
Still Alice – Lisa Genoa – 2007 – Simon and Schuster – 9781471140822 – available from Amazon
Elizabeth Is Missing – Emma Healey – 2014 – Penguin – 9780241968185 – available form Amazon – a really interesting story where the detective is living with a diagnosis of dementia
Married To Alzheimer’s – A Life Less Ordinary with Tony Booth – Steph Booth – 2019 – Penguin/Random House – 9781846045752 – available form Amazon
Dementia Beyond Disease – G. Allen Power, M.D – 2014 – Health Professions Press – 9781938870132 – available from Amazon
Dementia Support For Family and Friends – Dave Puslford and Rachel Thompson – 2020 – Jessica Kingsley – 9781785924378 – available from Amazon
Alzheimer’s – Caring For Your Loved One – Sharon Fish Mooney – 2008 – Mind, Body and Health – 9780745952895 – available from Amazon
Finding The Light In Dementia – A Guide for Families, Friends and Caregivers – Jane Mullins – 2017 – 9781999926809 – available from Amazon
The Validation Breakthrough – Naomi Feil – 2012 – 9781932529937 – available from Amazon – Most useful for support older people with challenging behaviour in residential care settings
The Summer Of Her Life – Thomas von Steinaecker and Barbara Yelin – 2020 – 9781910593783 – available from Amazon – really useful for staff
working in residential settings – the contents are a very visual and positive reminder that people have had lives!
I Am Still Me – A Collection of Poems – Tracey Shorthouse – 2017 – Author House – 9781524668198
To Forget With Grace – A Poetic Tale of Living With Early Onset Dementia – Jacqui Peedell and Jo Davies – 2017 – Chipmunkclassic – 9781783823444
Using Technology in Dementia Care – Professor Arlene Astell, Dr Sarah Kate Smith and Dr Phil Joddrell – 2019 – Jessica Kingsley – 9781785924170 – available from Amazon
Promoting Resilience in Dementia Care – Julie Christie – 2020 – Jessica Kingsley – 9781785926006 – available from Amazon
The Lewy Body Soldier – Norman McNamara – circa 2016 – Printed by Amazon – 9781536805871 – available from Amazon
Living Well with Dementia Through Music – A Resource Book for Activities Providers and Care Staff – Edited by Catherine Richards – 2020 – 9781785924880 – available from Amazon
Alzheimer’s Disease and Marriage – Lore K Wright – 1993 – Sage – 0803945213- available from Amazon
Imprisoned By Love – C.S. Brahams – 2020 – Clink Street – 9781913340827 – this is a fictional novel that tells the story of a family who experience younger onset dementia in their lives – available from Amazon
Supporting people with dementia: Understanding and responding to distressed behaviour – University of Stirling – 2019 – available from The Dementia Services Development Centre, , www.dementia.stir.ac.uk, 01786467740
Dementia, Sex and Wellbeing: A Person Centred Guide for People with Dementia, their Partners, Caregivers and Professionals – Danuta Lipinska – 2018 – Jessica Kingsley – 9781785921575 – available from Amazon 9781849052238 – available from Amazon
Playfulness and Dementia – John Killick – 2013 – Jessica Kingsley – 9781849052238 – available from Amazon
Slow Puncture – Living Well With Dementia – Peter Berry and Deb Bunt – 2020 – The Book Guild – 9781913208936 – available from Amazon
For Younger People:
My Mad Dad – the diary of an unravelling mind – Robyn Hollingworth – Orion Books, 2017, ISBN 9781409180012 – available on Amazon – teenagers/young adults
The Dementia Diaries – Matthew Snyman – A Novel in cartoons written by young people- Jessica Kingsley Publishers, 2016, ISBN 9781785920325 – available on Amazon – primary school age
Making Sense of Dementia – activities to help children understand dementia (Age 8+) – 2019 – Orchard Care Homes – , 03332301303
My Dad and Al – Annie Laurie – Charlie’s story about his dad who is living with Younger Onset Dementia – Author House, 2019, ISBN 9781728390321 – available on Amazon – aimed at teenagers
Lovely Old Lion – Julia Jarman and Susan Yarley – 1988 – Anderson Press – 9781783441181 – available from Amazon
Mr Alzheimer Goes To Toyland – 2019 – Emma Smith and Dr Joy Watson – 97817899722987 – available from Age UK Salford –
Recommended in Other Publications:
I’m Still Here – John Zeisel – Piatkus, 2011
Finding Grace In The Face of Dementia – John Dunlop – Crossway, 2017
First Steps To Living With Dementia – Simon Atkins – Lion Hudson, 2013
Live and Laugh with Dementia – Lee-Fay Low – Exisle Publishing, 2014
Communicating Across Dementia – Stephen Miller – Robinson – 2015
Dementia: A Positive Response – Onwards and Upwards – 2018
Where Memories Go – Sally Magnuson – Two Roads – 2014
A Promise Kept – Robertson McQuilkin – Tyndale House Publishers – 1999
Can I Tell You About Dementia? A Guide for Family, Friends and Carers – Jude Wilton – Jessica Kingsley – 2013
Telling Tales About Dementia – Lucy Whitman – Jessica Kingsley Publishers – 2010
Alzheimer’s and Other Dementia’s – Julian Hughes – Oxford University Press – 2011
Dementia: The One Stop Guide – June Andrews – Profile Books – 2015
Dementia For Dummies – Simon Atkins – John Wiley and Sons – 2015
Dementia Positive – John Killick – Luath Press – 2014
ABC of Dementia – Bernard Coope and Felicity Richards – Wiley-Blackwell – 2007
Dementia: Living in the Memories of God – John Swinton – SCM Press – 2017
Stammered Songbook – Erwin Mortier – Pushkin Press – 2015
Married to Alzheimer’s: A Life Less Ordinary – Penguin Random House – 2019
People With Dementia Speak Out – Lucy Whitman – Jessica Kingsley Publishers – 2016
Knickers In The Fridge – Jane Grierson – Lulu – 2018
Dementia From The Inside: A Doctor’s Personal Journey of Hope – SPCK – 2018
In Pursuit of Memory – Joseph Jebelli
A copy of the list is in word document to save or print off by clicking on this link Book List
Please let me know your thoughts and suggestions email Niblock@myid.org.uk
