National involvement
Government invites views on tackling major conditions in England – GOV.UK (www.gov.uk) A call for evidence has been launched to inform strategy on how best to prevent, diagnose, and manage six major groups of conditions. The Major Conditions Strategy will cover cancer, mental health and dementia. The strategy will take a long-term view of how […]
Over the coming months, three of our UK governments (England, Scotland, and Wales) will be working on new national strategies/action plans for dementia. This is also a chance to make an important point in Northern Ireland too. Politicians, commissioners, health boards and service providers must hear and see what you have to say. We will […]
Five women from DEEP groups recently took part in a lovely inter-generational project with the National Archive. You can find a blog and film here: https://blog.nationalarchives.gov.uk/connecting-through-collections-dementia-activists-meet-the-new-generation/
The Life Changes Trust is holding its latest Community & Dementia event on Thursday 25 February (10am to 1pm), this time focused on the Fife area. It will be chaired by two local people who are members of STAND (Striving Towards A New Day). It is free. To book, go to Eventbrite where there are […]
The Scottish Dementia Alumni have made a film about the making of their “Dementia and GP Services” booklet. And you can download the booklet here – GP Project Digital Final
Scottish Government consulted with people living with dementia and those involved in their care and support. They aimed to develop a transitional document for dementia during these extraordinary times of COVID-19. There is an intent to write a new strategy for dementia in and over the next 18 months. The transitional action plan was published […]
Here are some documents from the Dementia Oversight Implementation and Impact Group in Wales. Chris Roberts, Jayne Goodrick and Nigel Hullah represent the voices of people living with dementia in this group. Nigel has been given permission to circulate these documents by Welsh Government . Nigel says: “Don’t worry you won’t have to read them […]
The Scottish Dementia Alumni have been awarded a grant of £5,000 to create a resource to help GPs better support those living with dementia in their community. The funding has been awarded by the Life Changes Trust. The Scottish Dementia Alumni are a group of individuals living with a diagnosis of dementia, and who are […]
Are you new to dementia activism – or an advocate or ally of people who are? These tips draw on twenty years of learning by activists in Scotland. We hope that they hep you to avoid ‘bear traps’ and ‘reinventing the wheel’ – and to become a successful and well-supported activist! Click on link below […]
A new resource has been co-produced by The Centre for Economic and Social Research on Dementia, The Irish Dementia Working Group and The Alzheimer Society of Ireland. Guidelines for involving people with dementia in policy, advisory, consultation and conference activities draws on the voices of people living with dementia in Ireland and also draws on […]
This booklet was written and researched by the Scottish Dementia Alumni, a group of people who have each been living with different diagnoses of dementia for over ten years. We are experienced campaigners who have actively fought for the rights of people living with dementia for over a decade. We are people who have had […]
Scotland is above England, not only geographically, but also in Dementia support. This is because health and social care have been devolved to the Scottish Parliament. Nationally, the government has made Personal Care free for all with an overriding condition, not only those over 65. This came about from Franks Law, named after Frank Koppel […]
Taking Part Opportunities A Great Opportunity for London Groups…… https://www.dementiavoices.org.uk/deep-groups-news/a-great-opportunity-for-london-groups/ “Changes in behaviour associated with dementia – what do people with dementia and carers think about the language used?” Survey https://www.dementiavoices.org.uk/deep-groups-news/changes-in-behaviour-associated-with-dementia-what-do-people-with-dementia-and-carers-think-about-the-language-used-survey/ Ceri from Still Me in South Wales has had an idea… A festival of music and dementia https://www.dementiavoices.org.uk/deep-groups-news/ceri-from-still-me-in-south-wales-has-had-an-idea-a-festival-of-music-and-dementia/ Explore your creativity in […]
Rachel Thompson, previously the Professional Lead for Admiral Nursing with Dementia UK, has recently started a new role as a Consultant Admiral Nurse for Lewy Body dementia. Her role will include raising awareness of the needs of families affected by Lewy body dementia as well as providing education and guidance to professionals. She is really […]
The banners will be on display at The People’s History Museum in Manchester until January 19th 2020 Further information here:https://phm.org.uk/exhibitions/the-unfurlings-a-banner-display/
Is the Wales Dementia Plan working for you? There is an evaluation currently being done by Opinion Research Services. This is to provide the Welsh Government with evidence about the aims, implementation and contribution of the Dementia Action Plan (DAP). They are keen to hear from key stakeholders across dementia services, including in health and […]
The opening of The Unfurlings exhibition The artists Ian Beesley, Tony Husband & Ian McMillan have been working with groups in the DEEP network all around the country creating banners to campaign for a better understanding and representation of those living with dementia. Where: People’s History Museum New Court Street Manchester M3 3ER When: 16th […]
Conference 19 November 2019 10am—3.30pm St George’s Centre, 60 Great George Street, Leeds, LS1 3DL A conference to identify and discuss commonly occurring problems in accessing key legal rights to health and social care— and how these can be addressed Session 1 Short updates / with discussion on current / completed research projects (including): • […]
Lydia Nicholas says: “I wanted to send a note to say thank you for your support in reaching fantastic self-advocates to be a part of our work on tech and social care. I’m pleased to share with you a copy of Doteveryone’s new report, Better Care in the Age of Automation with our recommendations for […]
“There’s been lots of hard work , a few tears, much laughter, a cornucopia of fresh ideas ,lovingly stored and being acted upon by people living with dementia. All who have taken part realise we have had a fruitful year of trial and error, discussion, polite argument and debate. But what we have all achieved […]
DEEP 10th anniversary films
